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NSW NGO Researchers Forum 2022

June 23 @ 10:00 am - 11:30 am

Virtual Event Virtual Event





11 April 2022

NGO Researchers Forum: program/agenda for 28 April and 23 June


The response to last month's call-out for presentations on the theme of co-design was amazing! The number and quality of responses showed outstanding examples of co-design initiatives, and generosity within the NSW NGO sector to share learnings.

As a result,  the next two forums (28 April and 23 June, 10:00-11:30 am) will be on Co-Design.

Please click on Agenda NGO Researchers Forum April and June 2022 to view the detailed schedule for both dates, as well as specific speakers. Meanwhile, take a peek below into the topics and presenters.

Keen to speak in one of the forums? Send us an online EOI, please.

As this forum is owned by all participants, there's every room to suggest themes/topics as well as offer to speak! Please send us a simple expression of interest through the NGO Researchers Forum EOI form

Thursday 28 April, 10:00-11:30 am (part 1)

Aboriginal-led Co-design of the Aboriginal Guardianship Support Model for Better Outcomes

Speaker: AbSec Group Manager Operations

The Aboriginal Guardianship Support Model was the lead project under AbSec’s Aboriginal Commissioning Framework, a strategic approach to achieve better Aboriginal child and family outcomes.  Co-designers included end-service users and their family at the core of the service design, Aboriginal community members, service practitioners, government and funding body representatives.

Redkite’s Lived Experience Advisory Group (LEAG)

Speaker: Redkite Senior Research and Evaluation Officer 

In 2020, Redkite created its first Lived Experience Advisory Group (LEAG). It was made up of eight Redkite clients (including mothers whose child has or had cancer and young people living with cancer), from four different states across Australia.

The most important thing I will say about co-design is that it’s a term used with increasing frequency and yet it’s often mistaken for consultation, which it isn’t. It’s shared power, not (merely) checking in or consulting with consumers.- Redkite speaker

A Collaborative  Emergency Toolkit- Meals On Wheels (MOW) NSW

Speakers: Eurobodalla MOW GM & NSW MOW GM

A Collaborative Toolkit (ACT!) was a partnership in 2018-2020 between Meals On Wheels NSW, NSW Rural Fire Service, Fire and Rescue NSW, SES and Red Cross. A co-designed toolkit was developed, aimed to increase the preparedness of vulnerable clients who live in high-risk areas in the face of increasing and more severe natural disasters. Gail will give an overview of the project, while Allan will provide a regional perspective on the level and components of co-design (including trialling in 6 MOW sites) that went into the toolkit.

Thursday 23 June, 10:00-11:30 am (part 2)

True co-design is courageous, visionary, honest and reformative.

Flourish Australia- Inclusion

Through a deep co-design process, Flourish Australia developed co-design principles, accountabilities, guidelines and supporting policies to promote individual recovery pathways and opportunities that foster Social Citizenship. The Co-design Working Group conceived of 13 accountabilities. Co-Design Accountability 8 (which is brave, visionary and deeply inclusive) states: Co-design processes and outcomes must have a local focus but be aware and respecting of regional, national, global, intergalactic, all other dimensions, unique views, beliefs and realities. This presentation will discuss the need and reasons for including and promoting this accountability, and challenge & encourage services to engage in this level of co-design and co-production of services.

Behind the scenes project: Co-designing a strategy for supporting people with co-occurring mental health and alcohol use needs.

Flourish Australia- Professional Practice team

‘Behind the Scenes’ was a co-designed research project aimed at supporting people with co-occurring mental health and alcohol use needs. The lived expertise from committee members guided the approaches to the research, particularly with regard to ethics, recruitment, data collection and analysis. The project team met regularly to discuss scenarios and issues that arose as the project rolled out and as COVID presented many challenges. A key learning from the project was that the co-design approach led to opportunities for introducing and upskilling members of Flourish’s Community Research Advisory.

‘Head to Health’ and the voice of lived experience

Neami National- Manager Social Innovation and Design, and Regional Manager NSW

Neami is actively embedding the voice and leadership of Lived Experience in its staffing mix, governance structure and Philosophy of Care for each Head to Health service. This presentation will speak about phase one of Penrith ‘Head to Health’ co-design which included three online co-design workshops, a consultation session with the Nepean Blue Mountains Primary Health Network’s Lived Experience Advisory Group, two individual phone conversations, and five written feedback. In total, 21 people with a lived experience of recovery, or their carers or family, and 16 agency stakeholders (mental health professionals, support services and first responders) from the Penrith area were engaged. Read the Penrith Head to Health Co-Design Report here.

Co-design and Peer Support - The power of lived experience researchers

Community Disability Alliance Hunter (CDAH) and Diversity and Disability Alliance (DDAlliance) 

CDAH) and Diversity and DDAlliance are peer-led organisations, run by people with disability for people with disability, with over 400 peer members. "Our peers are people with disability who provide a wide range of peer support to people across Sydney and NSW. We foster diversity and inclusion of people reflecting the social model of disability. Both organisations are driven by the principle 'Nothing about us, without us', a central tenet of the disability rights movement."

In 2020, CDAH and DDAlliance commenced a research project exploring the challenges and benefits of peer support with a team of eight lived experience researchers with ethics approval through the University of Newcastle. The research is being undertaken across Sydney and NSW, and commenced in April 2021 and will be completed in March 2023.

"Using a participatory action method, our researchers with lived experience of disability and peer support lead the research design, data collection and data analysis. In all stages of the research and processes, there is nothing about us, without us."

"This presentation will showcase how peer support is used in a co-design research project to foster and support the involvement of people with lived experience in research. We will also share the experiences of the lived experience researchers in leading this research project. Our research demonstrates inclusion and challenges the pre-existing notions of disability in research, and how lived experience researchers can drive and shape research."

2022 forum dates 

Fourth Thursdays bi-monthly at 10:00 -11:30 am (via Zoom until further notice)

  • 28 April
  • 23 June
  • 25 August
  • 27 October

You will receive a Zoom link after registering.

Meeting results (notes, publicly-available recordings & resources)

9 March 2022



Meeting Notes (CLICK)

28 April 2022


Agenda/program, NGO RF 28 April

Call out for presentations (22 March)

23 June 2022 Agenda/program, see page 2
25 August 2022
27 October


Please register to attend this forum.

This forum is designed for NGO community organisations and relevant research partners/work colleagues in New South Wales. It is free to attend, but registration is required.

  • By registering, you agree to be on the NGO Researchers Forum updated mail list.
  • You may opt out of the mail list at any time by emailing (ATTN: NGO Researchers Forum).
  • Please scroll down the page and click on the RSVP button.
  • Registration is one-off. Previous registrants (i.e. 9 March RSVPs) need not register again.

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28 January 2022

NCOSS and the University of Sydney are pleased to announce the relaunch of the -

NGO Researchers Forum


“With research, communities should lead and academics follow .”

- University of Sydney, 1 July 2021


To support a move towards community-led research models, NCOSS and the University of Sydney’s Neighbourhood Research Hub are relaunching the NGO Researchers Forum.

To kick off, we are first hosting a 'co-design' workshop where participants will have the opportunity to contribute to the shape and content of four forums in 2022.

The workshop on 9 March will include:

  • An introductory discussion about community-led research, its key concepts and principles;
  • Discussion about the design of the forums, for example, lecture and working groups;
  • Discussion about the content: an identification of priorities; and
  • Identification of stakeholders and researchers who are engaged in NGO-related research.

From this meeting, NSW community organisations and individuals will be invited to submit proposals to present at the forums.

The schedule of events in 2022 is as follows:

Co-Design workshop: Wednesday 9th March, 2.00-3.30 pm

Regular forums: April, June, August, October (exact dates TBD)

All events will be online until further notice. Registrants will receive a reminder and meeting link closer to date.

Queries about this session to: (ATTN: NGO Researchers Forum)

Please click here to visit the University of Sydney Neighbourhood Research Hub.


June 23
10:00 am - 11:30 am
Event Category:

RSVP- 2022 NGO Researchers Forum

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